Friday, September 10, 2010
ONE Year Post-Transplant CELEBRATION!!
Monday, July 19, 2010
A Big Thank You
Tuesday, May 4, 2010
Enjoy America's Favorite Pastime AND Help L4J!!!
GREAT NEWS!!!
ATLANTATICKETPACKS.COM has partnered together with Lungs4Joseph to help raise funds for post-transplant medications.
If you like going to Atlanta Braves games or know anyone who does ... PLEASE send them to atlantaticketpacks.com for one of the best deals you can find on Braves tickets! What better way to enjoy the rest of the Spring and all of the Summer than by taking your friends and family to enjoy America's favorite pastime knowing that you have also helped Lungs4Joseph.
Answers to most of the questions you may have can be found at atlantaticketpacks.com
Monday, April 12, 2010
GO NUTS!!!
EXCITING NEWS!!! "Lungs for Joseph" is setting out on a fund raising adventure and we would LOVE for YOU to be a part of it! Don't worry ... you don't have to sell anything ... you don't have to show up anywhere... and there's no manual labor involved :-)
In an effort to curb ongoing post transplant medication costs, L4J will be opening a snack stand named .... are you ready..... GO NUTS!!! Yep that's right ... we will be providing Henry County with all sorts of delectable treats with the highlight being FRESH BOILED PEANUTS! Voted "Best Boiled Peanuts in Atlanta" (By our privately selected panel :-) ) these goober peas are going to be irresistible!
Along with our main attraction we will also be selling other favorites such as ... Peanut Brittle, Peanut butter fudge, Peanut clusters, Cotton candy, Lemonade, and other tasty treats. Almost everything we sell will be made by hand and will be sure to make one's mouth happy :-)
So how can you help? Well... we are so glad you asked! Here is a list of items we need.
Food Items:
Velveta cheese blocks
Vanilla extract
Unsalted Butter
Raw peanuts (no shell)
Jumbo raw peanuts (in shell)
Roasted peanuts (no shell)
White almond bark
Dark almond bark
Karo syrup "clear"
Big League Chew Gum Pouches
Country Time pink lemonade mix
Confectioners Powder sugar
Regular granulated sugar
Regular Salt
Small Marshmallows
Rice krispies
Creamy peanut butter
Cajun seasoning
Named Brand Bottled Water
Non-Food Items:
22 quart or larger stock pot
Electric stove top and or large flat griddle
16 ounce to-go cups
Lids for the 16 ounce to go cups
Straws
Paper towels
Individually wrapped wet wipes
"thank you" to go bags
Sandwich size ziploc bags
Ice/Drink Coolers
Small portable electric cooler
Fairly large "instant up" Canopy
Light weight fold up (chairs in a bag) with cup holders
Several extra long drop chords
heavy duty power strips
Things we would also like to use if you know anyone that has these items.
Professional grade snow cone maker
Slushy machine
Also ... if anyone knows anyone that can make signs or banners we could definitely use their help!
Let us know what you can provide or have donated and we will pick it up. Just send us a private message or simply respond to this post.
Items in Bold are items we need multiples of. Actually, we will gladly take multiples of any item on the list but these are the ones that are really important.
One more thing ... we REALLY need items by this weekend. We will gladly accept donations after this weekend but we REALLY need items by then!
Thank You so much for your help!!!
Alone we can do little. Together we can do so much!
Good News!!!
Friday, April 9, 2010
Braves Fundraiser Results...
On April 8th, Lungs4Joseph had 17 volunteers go out to the Atlanta Braves game to sell raffle tickets to raise money for Joseph's new pipes and was able to collect $683.71!!! THANK YOU everybody that went out to sell the 50/50 raffle tickets!!! And a special, THANK YOU!!!...to Anna Hardiman for organizing this fundraiser!!!
Thursday, April 8, 2010
6th Month Report
Can you believe it has been half a year since the translant?! It has been an amazing 6th months watching Joseph do things that he once only dreamed of! As a matter of fact, this past Thursday morning, Joseph CLIMBED Stone Mountain to watch the sunrise!!! Yesterday Joseph went in for his 6 month checkup and was given a clean bill of health and performed better on his pulmonary function test than EVER! He also went in for his 6 month bronchoscopy today and was told that the lungs still "LOOK GREAT"!!! TO GOD BE THE GLORY!!!
Tuesday, April 6, 2010
Atlanta Braves Fundraiser!!!
Help us raise funds for Lungs4Joseph by selling 50/50 raffle tickets to Braves fans this coming Thursday at Turner Field! Not only will you be helping Joseph pay for his transplant and monthly medications, but you'll have a great time too! We need between 25-80 volunteers. We will be selling raffle tickets up into the bottom of the 2nd inning. After that...we all get to enjoy the game...FOR FREE!
At the end of the 2nd inning, one ticket will be selected and one lucky fan will win 50% of the funds raised. The additional 50% will be split between Lungs for Joseph and the Atlanta Braves Foundation.
According to Atlanta Braves Foundation all volunteers must be 18 or older.
For those of you who would like to carpool with us...we will be meeting at The Landing Church (1640 Hwy 42 McDonough, GA. 30253) at 2:30pm. If you would rather meet us at the park, you can meet us near the front entrance of Turner Field at Ticket Sales at 3:30pm. THANK YOU!!!
Monday, February 1, 2010
Benefit Concert in Essex...Thanks Uncle Vince & Shana!
THE THREAT of a terminal illness on a young American man has been lifted with help from a caring Christian family and musical friends in the United Kingdom.
Joseph McCanne suffered from cystic fibrosis, a progressive and incurable disease that attacks the lungs. The only known remedy is major surgery and a lung transplant.
Joseph is a pastor in USA and when diagnosed, his US family, friends and British based family, mounted a vigorous campaign to achieve the daunting but life saving transplant, as well as a financial mountain to save Joseph's life
With medical insurance only covering 80 per cent of the $500,000 cost of the operation and treatment, the family were left with finding the financial mountain of $100,000, assuming a suitable donor could be found.
The race for life started when the 31-year-old’s lung capacity slowly reduced to the dangerous level of just 14 per cent in the latter part of this year.
Finding a transplant donor filled the medics time and reaching the financial goal kept the family busy, but they had reached $70,000 by September in time for the great news that a donor had been found.
Joseph underwent transplant surgery immediately and received his new lungs, astounding his doctors with his progress within a mere six weeks.
However, there was still the matter of a further $30,000 to find and Joseph’s English family made the final push by arranging a musical concert at their church in Essex.
Vince and Shana Avery, regular members of the Peniel Church in Brentwood, came up with the idea of a fund raising concert by Brentwood Brass, a band of whom Vince and other members of the church belong to.
The 26 strong band willingly agreed, with Vince and Shana making all the arrangements for not only the concert, but also an auction to help fill the coffers.
With items such as holidays, theatre tickets, baby sitters and even a limited edition original photograph of Status Quo icon, Rick Parfitt; the event took place before a capacity audience in November.
The generous patrons not only enjoyed an evening of big band music, but also dug deep and raised a staggering $5,500 in just one night.
Brentwood Brass was formed a decade ago from tutors and friends of the Essex based Royal British Legion Youth Marching Band, a group of 90 plus youngsters who to date have many national titles and credits it its name as well as a recent well documented appearance at the Tournament of Roses Parade in Pasadena, California.
The older generation of players in Brentwood Brass satisfy their love of music by performing sitting down rather than marching, but in the process have raised more than £10,000 for charity.
With a repertoire encompassing arrangements of most of the big bands including Duke Ellington and Glenn Miller, the band plays anything from Bizet to Vaughan Williams as well.
The concert in September kept the mood light and included a good selection with Gene Kelly’s Singing in the Rain, Breezing Down Broadway and New York New York in honour of Joseph.
The good news came from Vince at the end of November saying the transplant was successful and Joseph would soon be going home. He said: “The doctors are amazed at his progress and said that looking at the lungs you would never know he had had a transplant. He has been exercising and playing sports like tennis that he has never been able to play before in his life.
In a world of challenges, this is a success story of family, faith and friendship spanning the Atlantic and enhancing the beauty of music by working together to give another human being the important gift of life.
Saturday, November 21, 2009
Tuesday, November 17, 2009
Still going strong!!!
Saturday, November 7, 2009
One Month After the Transplant
I just wanted to take a moment to thank you ALL again for your continued prayers and support for us!! Without you I know we would not be where we are today! Prayer truly is POWERFUL!!
We love you all!
~Kayse
Friday, November 6, 2009
Bronchoscopy
They took a biopsy and will send it off to check for any rejection. However, the doctor doesn't expect to find any.
Thank you again for all of your prayers and support!
We love you!
~Kayse
Thursday, November 5, 2009
All is well...Thank You!
Well, Kayse and I went to Emory yesterday (Wednesday, Nov.4) for my 4 week visit and had a series of tests, scans, labs, etc. done. Everything is looking and going GREAT!!!
I go in tomorrow for a bronchoscopy where they will put me to sleep and go in and examine the new lungs and also take a small biopsy to check for any signs of rejection. They did the same thing two weeks ago and there were no signs of any rejection. Join us in prayer believing that the same will be true tomorrow!
Also.. TO ALL OF YOU who are continuing to fundraise and send/deposit funds for Lungs4Joseph...THANK YOU! We are still needing to raise the money for the transplant and the post transplant medications and have almost reached our initial 100k goal! You all have been AMAZING!!! I thank God for all of you and pray that He bless you in abundance for being such a blessing!
I LOVE YOU ALL SO MUCH!!!
-Joseph
Monday, November 2, 2009
Still going strong!!
Later this afternoon, Joseph wanted to exercise some MORE!! WOW!! So, he called Michael over and we all walked about a mile around our neighborhood. Joseph kept talking about how awesome it was that he could do that now... that he could actually walk and not get short of breath! It's something he hasn't experienced in over 20 years!
We are so thankful for this amazing GIFT that has been given to us!! We are constantly reminded of the precious life who gave us these amazing new lungs. That special person is truly our greatest hero! Please continue to pray for their family and friends as I am sure they are still mourning. May God shower down His comfort and peace upon them.
Again... thank you all for your prayers and support. We love you!
~Kayse
Thursday, October 29, 2009
First Day of Pulmonary Rehab!
Joseph's first day of pulmonary rehab, 3 weeks after his lung transplant.
Joseph is HOME!!
Joseph's recovery has been extremely fast!! Patients normally have to stay at the Mason House for 1-2 weeks after being released from the hospital. We were so excited that Joseph's health was improving so quickly that he got to go home after only 3 nights!!
We arrived home and our dogs attacked us with kisses!! They had missed us so much!! After cuddling with them and dropping off our things, my father (Lonnie Mussell) treated us to a meal at one of Joseph's favorite restaurants - LONGHORN STEAKHOUSE!! Mmmmmm.... good stuff!!
We then made a stop at Publix to get a few groceries where we met up with Jennifer Cravey (HEY JENNIFER!!), one of our good friends that we used to go to church with! We got a good movie from the Blockbuster machine, came home and cuddled up to a good movie! It's good to have my honey home!! :)
We got up early this morning for Joseph's first pulmonary rehabilitation session. Joseph did PHENOMENAL!! MUCH BETTER THAN EXPECTED!! We are going to post a video about his session in a few minutes once it finishes downloading! :)
We'll continue to keep you posted on Joseph's journey!!
We love you and appreciate your prayers and support!! Your prayers are the reason why Joseph is doing so well! God is so GOOD!!
ALSO.... in case you've been wondering.... the actual amount we have raised is higher than what the "thermometer" says on the home page. We are still waiting on a few contributions that have been promised to us (totaling $30,000!!!)... so really, we have close to $80,000 now raised!!! WOW!!! PRAISE GOD FROM WHOM ALL BLESSINGS FLOW!!! There are still those out there who are planning and hosting fundraisers on our behalf so that we can meet our $100,000 goal! THANK YOU SO MUCH TO ALL OF YOU!!! YOU ARE TRULY OUR "SUPERHEROES!" Joseph is feeling better than he has in over 20 years (since 5th grade he says)!! All of this is possible because of YOU!!
Please continue to pray for our donor family as well. We have yet to meet them, but we know that they are still mourning the loss of their loved one. We are so thankful for the gift that they have given us! Joseph will be able to live a long, happy and normal life now. Also, if you aren't an organ donor... PLEASE CONSIDER BECOMING ONE. You never know how many lives your life could save!!
Much love,
~Kayse
Wednesday, October 28, 2009
Monday, October 26, 2009
Finally FREE!!
For Joseph's first night out we decided to go and eat at one of our new favorite spots - Mellow Mushroom with two of Joseph's best buds- Michael and Robbe. We got a barbecue chicken pizza that was absolutely AMAZING. It was so nice to be able to get out and have fun again! Joseph is doing so great and was REALLY enjoying not having to eat another hospital meal!
We also had to make a quick stop at our house as we had some medication there that Joseph needed. The dogs were so excited to see Joseph after he had been gone for almost 3 weeks!! It was kinda sad that we had to leave them again... but, we really weren't supposed to be that far away from the hospital... so we headed back up to the Mason House pretty quickly. The doctors just want to keep Joseph close by in case of an emergency. He's doing fine, but they just take those precautions with every transplant patient.
Well... this morning we had breakfast and came back to our room where we started our new regimine of meds!! Joseph had to take a handful of medications, insulin (for his high blood sugar caused by one of his new meds), vital signs (blood pressure, temperature, weight, blood sugar levels), and finally a breathing treatment!! This is going to take some getting used to!! He has to record his vital signs three times a day, and take heavy doses of medication every morning and night!! Hopefully in the next several months, many of these medications will be tapered off... but for now, this is his new routine. Please continue to agree with us that these meds will work well and ONLY do what they are supposed to do! We don't want any nasty side effects!!
Well... I think my hubby and I are going to cuddle up to a good movie and relax without having nurses interrupt us every five minutes..... that will be nice! :) We definitely appreciate the work that the nurses and doctors have done, but it is so NICE to finally get some good rest!!
We love you guys! Thanks again for your continued prayers and support!!
~Kayse
Saturday, October 24, 2009
FREEE...Sort of.
Friday, October 23, 2009
Tube #3 Out!!!
Tuesday, October 20, 2009
The Beginning of the Journey...
Wow... what an amazing journey this has been for us! To see how far Joseph has come in such a short amount of time just amazes me! Joseph has regained so much strength and has been doing so well!! He's been walking around the hospital, exercising on his stationary bike in his room, and NOT having to use oxygen to help him!! He is able to breathe DEEPLY for the first time in over 20 years!! Wow!! God is so good!!
As easy as his recovery has been, we know that this is just the beginning of a very long road ahead of us! We met with our transplant coordinator, Melissa, the other day to go over Joseph's schedule for the next year. Every week over the next 12 weeks, Joseph will have to come to Emory for tests and lab work. He will be taking 13 different medications and several of them will have to be monitored closely to see how his body responds. They have to get the perfect balance of meds, and every person is different in how their body handles them. Once this balance is found, he won't have to go in for testing quite as often. Instead of every week, it will be once or twice a month every month until next October.
The primary concern now is rejection and infection. Whenever someone has a transplant, their body will try to attack the new organ because it does not recognize it. Because of this, Joseph will need to take anti-rejection medication for the rest of his life. These drugs will suppress his immune system so that his body will not attack his new lungs. However, the problem with this is that without a strong immune system, his body will be very vulnerable to infection. Unfortunately, of all the organs, the lungs are the most problematic in this area as they are exposed to outside elements ALL of the time! Therefore, Joseph will also have to take anti-infection medications forever as well. Joseph will also be taking several supplements, including calcium, magnesium, folic acid and a multi-vitamin.
With all of the medications he will be taking, there can sometimes be some bad side-effects. However, we know that God is bigger than ALL of those things!! Recently, during a meeting with Pastor Scott Reece, he taught us a new way to pray. He said that when Joseph takes his medications to pray that they "ONLY do what they are supposed to do to HELP his body." We thought that was a really great way to pray. Please pray that prayer with us as well. We don't want any damage to be done to Joseph's kidneys or liver, or any other part of his body!! Please pray also that his body will not need to take high dosages of the anti-rejection medication. I am truly believing for a miracle for his body to completely ACCEPT these new lungs and to treat them as if they were his from birth! Wouldn't that be awesome?? :)
We asked Melissa (our transplant coordinator) about success stories of other patients who have had lung transplants. She told us of several. One in particular is a nurse who has lived 19 years since her lung transplant and is doing GREAT!! Hearing this was definitely an encouragement to us!!
We know that God is truly a MIGHTY God and He is fighting for Joseph!! He will live A LONG LIFE!! He shall not die, but LIVE to proclaim the works of the Lord!!"(Psalm 118:17)
As always, we love you guys! Thank you for your prayers and continued support!!
Blessings!
~Kayse
Wednesday, October 14, 2009
The MOMENT WE'VE ALL BEEN WAITING FOR / GOD IS FAITHFUL
Joseph's first interview after the transplant.
Thank you again to ALL of you who have supported us financially and especially with your prayers over the past couple of months!! We are just so thankful that God has placed so many wonderful people in our lives! We are truly blessed!! Please continue to pray for Joseph as he continues to recover. Pray against infection and rejection specifically and that he will get to come home soon! :)
We love you all!! Please continue to help us get the word out! We have raised over $50,000 already, but we still have a long way to go! We know that with your help we can get there!!
WE LOVE YOU!!!
Saturday, October 10, 2009
AGAINST ALL ODDS - THE JOSEPH MCCANNE STORY
Short film written, directed, shot, edited and produced by Michael B. Hardie and Worship Through the Arts.
(www.worshipthroughthearts.com)
Special thanks to Gary Molander and Floodgate Productions for their contribution.
(www.floodgateproductions.com)
A SIGH OF RELIEF
Hi everyone... It's Michael.
Just wanted to give everyone an update on Joseph's condition today. The family has been in and out of the room all day {for good reason I might add} so updating the blog has not been the first thing on their minds.
OK... let me just say that since the surgery it's only been 3 days since I have been able to have a conversation with my best friend but ... It seems like it's been 3 years. I didn't get a chance to see him yesterday when he woke up and was trying to talk and it just about ripped my heart out. So when I arrived at Emory today I was anxious to say the least. I walked into the ICU and walked back to his room. I couldn't go in until I got all the gear on{Mask-Gloves-Gown} so I was standing outside the room looking at him saying... I'm coming ...I'm coming! The stupid gloves wouldn't go on right and I ripped a hole in the gown. Ok... I digress.... I finally got suited up and was able to make my way to the bedside. I can't even tell you how AWESOME it was to see him alert and talking and smiling! I just squeezed his hand and didn't want to let go. Even though Joseph is obviously in allot of pain and still looks like the bionic man... he is back to his old self... full of humor and concern for everyone but himself.
Friday, October 9, 2009
It's a great morning!
While we were in his room a few minutes ago, he struggled to communicate with us. With the ventilator on he was unable to talk. This was very frustrating for him. He was trying to give us signs as best as he could, but it was hard for us to understand what he was trying to say. We then got a pen and pad for him to write on and he wrote, "I can't talk." It was so pitiful! The next message he wrote was, "do you need chairs in here?" Even with everything he was going through and feeling as bad as he was, he was concerned about our well being!! What a sweetie pie!! He even took time to tell his nurse Emmanuel thank you... he pointed to him and gave him the "okay" sign with his fingers. He's just so sweet!! He's always thinking of others and wanting them to feel important and appreciated!!
With all of the tubes and machines he is hooked up to right now, he's pretty uncomfortable. Please continue to pray for him today and that he will be able to rest and continue to recover so that he can be taken off the ventilator.
Thank you all for your prayers and support! We love you! If you haven't already, please check out the video updates below!
Thursday, October 8, 2009
FIRST DAY TIMELINE
First of all we want to convey a HUGE THANK YOU to all of you who have been keeping up with us through this whole process. Joseph loves you all very much and if he could right now he would tell you so. 36 people made their way through the doors of Emory yesterday for one purpose: to love on and support Joseph and the family. Along with the 36, there were hundreds if not thousands of people joining us in prayer yesterday from 6 continents including these countries; Afghanistan, Kenya, Australia, Columbia, Honduras, Israel, Korea, Mexico, and the United Kingdom. And that's just the ones we can recall! After Lonnie Mussell (Joseph's father in law) shared this with a friend his friend said “well I have friends in the Southern tip of Chile who can strap a prayer to the back of a penguin and send it across a few miles of ocean to Antarctica to make it all SEVEN continents! (We didn’t do that, but we are crazy enough to LOL!)
Below is a timeline of what took place yesterday:
1:30 am Wednesday morning: Joseph wakes up and doesn't know why he feels so awake (or bright eyed and bushy tailed as he says)
1:45 am Joseph receives the call from Emory to come right away because they have some lungs for him
4:00 am at this point Joseph has been examined and they have determined that everything looks good and the doctor will fly out to get the lungs (we don't know where he had to fly for privacy reasons but we do know that the donor was young, so we need to continue to pray for the donor family as they are mourning the loss of their loved one today)
6:00 am the doctor returns with the lungs and they take Joseph to surgery
8:00 am we get a call saying they are about to begin the surgery
11:00 am, we got an update that they were about to take Joseph’s right lung out and put the new right lung in and they would call us with an update before starting the left one
1:00 pm, we got the update that the right lung was in and working great. They would now start on the left lung
2:00 pm, just an hour later we get the call that BOTH lungs are in and working fine. They will continue to monitor him a while and then sew him up and take him to ICU after
2:45 pm, they let us know they were closing him up and the doctor would come to speak with us after they finish and transfer Joseph to the ICU
4:30 pm, The doctor came to speak with us and he said that he felt very positive about everything but wanted to monitor the inflammation and watch for any excess bleeding. They had to put Joseph on a heart-lung bypass machine for 4 hours which caused the lungs to become inflamed.
5:45pm The Doctor decided to take Joseph back to the O.R. due to excessive bleeding. His blood wouldn’t clot and the lungs continued to swell and ooze blood. They had to re-open, drain, stitch, and clean. He was also given countless units of blood.
9:00 pm, the doctor came to speak to us and said that the 2nd surgery went well and the blood was clotting much better and his oxygenation levels were even better than before. So everything was looking great!
1:30am ICU called and said Joseph was waking up. Kayse (wife), Sherry (mom), Adrianne (sister), and Nadine (Grandmother) rushed down from the waiting room to see him. He could not open his eyes but was defiantly aware of their presence. The doctor asked him to move his feet and he did!!!! This was very exciting. His sister asked him to lift his eyebrows and he did!!! The ladies continued to talk to him and tell him of all the prayers and people who came to visit. While holding Joseph’s hand, Sherry (mom) said, “Baby, I love you” Joseph was able to lightly squeeze her hand 3 times, which is code for I love you too!
7:30am Dr. says he is recovering well and they lowered his ventilator to provide 30% oxygen (it was once at 100%). Normal room air provides 21% oxygen so they want to get him down to that amount. They tell the family that they are keeping him very sedated for the rest of the day to allow his body to recover from all of the trauma.
Stay tuned for more updates…
Wednesday, October 7, 2009
He's Awake!
Joseph has received such AMAZING care here at Emory and the doctors and nurses who have fought for him are my biggest heroes right now!!! They are just so amazing!! They kept us informed every step of the way as the transplant progressed. Things went well, but after the procedure Joseph was continuing to bleed A LOT.... so much so that they had to bring him back into the operating room at about 6:00 last night to do another surgery to take care of the excess blood that was pooling in his chest cavity and to try and stop the bleeding as much as possible. We were able to see him briefly before they took him back into surgery again. That was some of the hardest moments of my life (and I know for his mom, sister, and grandma!!) We all felt so hopeless - but something inside of me just screamed NO! This wasn't going to end this way! I felt something rise up in my heart and I just pointed my finger at Joseph and said, "Joseph McCanne! You shall not die, but you WILL live to proclaim the works of the Lord! You are healed! Your lungs are whole!! You wil die an OLD MAN one day!!" It was strange... as the words came out of my mouth, I almost didn't know who was speaking them. It kind of shocked me, actually. I know that it wasn't me. I didn't have the strength inside of me to do that. I know it was the Lord... He was fighting for us that night!!
They took him back for the surgery and worked for about three hours. They gave him countless units of blood.... it was pretty scary there for a while. But, at about 9:30 Dr. Force (the primary surgeon) came to tell us the good news that Joseph was doing much better! The bleeding had been controlled, his blood was starting to clot finally, and they were able to remove the excess blood that was pressing against his new lungs. Seeing the doctor smile at us made releif just rush through my heart!!
We were able to go back and see him in small groups about an hour later. He was still under heavy sedation, but we were able to hold his hand and love on him a little.
Joseph's mom, grandma, sister and I searched for a place to crash for a few hours and found a WONDERFUL hideaway room close by all to ourselves! We got a couple of hours of sleep and the nurse just called us at about 1:45 AM to let us know that Joseph was AWAKE!! We rushed to his room and although he was unable to speak to us, he wiggled his toes and raised his eyebrows when we asked him questions!! He even raised one eyebrow higher than the other in a mischevious kind of way - he's such a nut!! He's doing so much better now!! They are already slowly weaning him off the ventilator and think he will be off of it completely later today!! WOW!!! That is just AMAZING!!!
Thank you so much for your prayers for Joseph over the past 24 hours!! We are so thankful for so many wonderful friends and family who have surrounded us during this time to cover us all in prayer!! Ya'll are our heroes!! We love you so much!! Pastor Scott Reece said that tonight Facebook was "Josephbook" and he was right!! Every post had something to do with Joseph and I know that he was being lifted in prayer literally across the globe!! THANK YOU ALL!!! Please continue to pray and rejoice with us as Joseph continues to recover over the next several weeks.
Check on the website or Facebook regularly for more updates!!
We're going to try and get some more sleep now if we can - we're so excited!!! God is SO good!!
Much love!
~Kayse (and Adrianne, Sherry, and Gee Gee)
THE TIME HAS COME!
The lungs have been flown in and Joseph is prepped and ready to be put under. Here are the final moments before they wheel him back.
Sunday, October 4, 2009
Chick-Fil-A MooCow L4J Charity Ride
Family Fun Night
~Joseph
Wednesday, September 23, 2009
Sunday, September 13, 2009
Tooth Pulled = New Lungs...Weird!
Well...the last thing on my "List of things to do before being listed" was a dental exam. I thought I was just going to go in, get x-rayed, hear a lecture on my not flossing enough and then get the all-clear for the transplant. Things didn't quite turn out like that. They found infection. About 3 years ago I had a root canal and was given a temporary cap that I was to come back and exchange for a permanent one. I never did. Not even after the temporary cap fell out. I know...my bad :o)
Anyway...This past Thursday (Sept. 10) they pulled the tooth and placed me on antibiotics to clear the infection. The transplant team will meet on Tuesdays and goes over my case...so I hope to hear something back from them on when I can be listed. It very well could be this week! After that happens...We wait for the phone call and my life changes forever!
Awesome Night of Worship
Saturday, September 12, 2009
Sunday, September 6, 2009
Thursday, August 27, 2009
VIDEO SHOOT
(2450 Mt. Carmel Rd. Hampton, GA. 30228)
The interviews were GREAT! I can't wait to see the finished product :o)
Also...We have had 2 more people sign on to be part of our fundraising team!!! That makes 21! For more info on what the "Fundraising Team" is....scroll down to the "looking for 40" posting.
Sunday, August 23, 2009
Friday, August 21, 2009
SUPERHEROES NEEDED
I wasn’t just simply pretending to be superman now...It became real. No more make believe for this six year old. There’s only so much you can do with a towel….but with a cape…
Shortly after receiving the cape I convinced my mother to buy me a pair of red fruit of the looms with a yellow band. After that I somehow ended up with a superman logo t-shirt and, to top it all off, a pair of solid yellow knee high tube socks. Now I was fully aware that Superman’s boots were red…but when your six years old and you’ve got it that close…who cares? My costume was complete. Well…at least it was complete enough for me.
I remember one particular Saturday going to my phone booth (closet) to turn myself into Superman. Yellow socks pulled up to my knees to serve as boots…Check. Red underwear with yellow band…Check. Blue T-shirt with Superman emblem on chest tucked into red underwear…Check. Last but certainly not least, cape…Check.
It wasn’t long after dawning myself in my superhero regalia, flying a couple rounds through the house and humming the superman theme tune that I found my first opportunity to rescue a citizen in distress. The problem: Bike accident. The victim: An older neighborhood boy. The villain: Neighbors mailbox
In no time flat I went from looking out the kitchen window to running out the front door; arms outstretched…still humming the superman theme. I was up…up…and away! It was a great feeling. I was a superhero and I was doing what superheros do…save lives. I ran…err…flew over to the boy as fast as I could, bent down and in as mature a voice as I could manage, asked the boy if he was OK.
Now you have to understand that the next set of events is etched into my memory clearer than the events described above. Follow me as I relive it for you…
I’m looking over at this boy who was, to me, a lot older (probably 9 or 10). He hasn’t even looked at me as he is too concerned and focused on his skinned up knee. He’s holding back tears in an effort to be a big boy. As any superhero would…I begin grabbing the boys arm and his ‘good’ leg in an effort to pick him up and take him to the comforting arms of his father…not even taking into consideration that he is at least 25 pounds heavier than myself.
It soon becomes apparent that my picking up the boy is not going to happen so I take a step back to reassess the situation. As I do…to the right…I hear the sound of bicycle peddles and rubber on concrete accompanied by the sound of growing laughter. I’m getting upset. How dare these four bullies laugh at this boy and his bike mishap? What? Oh my goodness! They aren’t laughing at the boy…they’re laughing at me. Even the hurt boy when he finally looks up at me begins to laugh. Why are they laughing? Don’t they know I’m superman?
I WAS Superman…until then. Then it hit me...I saw it. I saw it for the first time. I wasn’t a powerful superhero fighting crime and saving lives. I was outside in my underwear. I ran home. I ran home and I hid. Talk about a humiliating and disappointing slap in the face!
Twenty four years later and I still love helping people. The desire to save lives and be someone’s hero still burns inside. I don’t wear a costume or a cape…but my heart is still in the same place. Through the years I’ve had the opportunity to run to the rescue for the young, the elderly, the orphans, the widows, the incarcerated, and the homeless. I love doing it all but I’m now being faced with the sad realization that I'm no longer as strong as I once imagined I was and I'm quickly losing the power and ability to do any of it. I’m realizing once more that I'm outside in my underwear.
Just looking at me you may think, “He looks healthy enough “. Well, Thank you! But the truth is…It's all a facade. My reality is that my lungs are operating at 14% of their expected capacity. I’m a frail 110 pounds and lately the simplest of tasks have become a struggle.
The simple truth is… I now need a hero.
YOU CAN BE THAT HERO! YOU have the ability to save my life…literally. You can do it in a variety of ways.
FIRST and foremost I need your PRAYERS.
SECOND…Money. The procedure and post transplant medications are very expensive.
THIRD…Fundraisers. Help us with raising funds for the transplant and immuno-suppressant drugs.
FOURTH…Get the word out about my need for a new set of pipes
“A hero is a man (or woman) who does what he can.” – Romain Rolland
God Bless!
Joseph
Wednesday, August 19, 2009
Monday, August 17, 2009
Looking for 40
We are looking for 40 individuals to be a part of our "Fundraising Team" to help us reach our goal! The idea is that each person will conduct their own fundraiser(s) to raise $2,500.
40 x $2,500 = $100,000!! The power of multiplication is AMAZING! :)
Working TOGETHER, I know that we can reach our goal!! We would LOVE to raise this initial goal of $100,000 by the end of October!! I know we can do it!!
SO FAR, we have 19 people who have stepped up to the plate!! Thank you ALL so much!! 21 more to go!!
If you would like to help us by joining our team: comment to this blog, send us a message on our Facebook fan page, or email us at info@lungs4joseph.com.
Here are some ideas for fundraisers:
* letter writing (we have a template you can use)
* church fundraiser/ love offering (we have a video you can show during a service)
* change containers in local businesses, churches, etc.
* road blocks
* bake sale
* pot-luck supper or spaghetti dinner
* car wash
* krispy kreme donut fundraiser
* product sales (through catalogs, etc.)
* garage sale
* raffles
* benefit concerts
* auctions
* school fundraising
* spirit days at restaurants (example: Chik-fil-A)
* house parties (Pampered Chef, Lia Sophia, Arbonne, Avon, Mary Kay...)
* ??? Your own creative idea!! ???
Thank you ALL so much for helping us!! You are helping to save Joseph's life and I can never thank you enough! I am so excited at the possibilities this lung transplant is going to give us! I can't wait to see what our future holds! Thank YOU for making that future a possibility for us!!!
We love you all!
~Kayse
Thank You!
CJ's HOT DOGS in McDonough and also GEZZO'S GRILL in McDonough for both of your continued support in helping to raise funds for my new lungs!
Also...I would like to thank LISA KELLY for all of your hard work in printing the Lungs4Joseph t-shirts!!! I am sooo humbled!
Also...I want to thank the UPS STORE in McDonough for graciously donating a mailbox for Lungs4Joseph for a year!
Your love, care, prayers and support amazes me! Thank you! God Bless!!!
- Joseph
Sunday, August 16, 2009
Thank You Glad Tidings Assembly of God!!!
Speaking of Joseph... the last couple of days have been kind of rough for him. He's been running fevers off and on, and has been very congested. He's only been home from the hospital for a few weeks, and he's already thinking he will be needing to go back again for another "tune up" very soon.
We cannot wait for the time when he will get that phone call that his new lungs are available! No more lung infections or hospital stays... no more hacking and coughing.... he will finally be able to breathe... run... climb stairs... swim... dance... and LIVE his life!! All of this will be possible BECAUSE OF PEOPLE LIKE YOU!! Thank you so much again! We love you!
~Kayse